DIG PKU

Patient Advocacy Group of the Year 2022
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<p>DIG PKU (est. 1975) is the German Advocacy Group for patients with Phenylketonuria (PKU) and other rare inherited disorders of protein metabolism. DIG PKU helps 1750 members to develop and maintain disease specific health literacy. Beyond that, DIG PKU advocates for inadequately met patients needs to policymakers, social and health system stakeholders, science and health care providers, working towards access to early diagnosis and optimal care for all patients regardless of age and background.</p>