The Fragile X Society

The Fragile X Society

GHP Excellence Award for Research in Fragile X Syndrome - UK

Fragile X Syndrome is the most common inherited cause of learning disability and may affect multiple members of families in different ways. Unfortunately, the Fragile X-Associated conditions are still too often overlooked or misunderstood, which can result in inadequate support or feelings of isolation. Through our work we aim to change this. We provide specialist information and practical guidance to support and empower individuals and families living with fragile X, and the professionals who support them. We also partner closely with researchers to help guide research aligned with families concerns, support recruitment and accessibly disseminate the findings amongst our community.